• Anonymous

World Hemophilia Day

Today marks the 29th World Hemophilia Day! This year, the World Federation of Hemophilia (WFH) is focusing on reaching out and identifying new members of the bleeding disorders community, with the tagline, "Reaching Out: The First Step to Care." Patient outreach and identification is about finding and supporting individuals with hemophilia or other bleeding disorders—including von Willebrand disease—who have not yet been diagnosed or whose health needs are not being met by health care services. These patients can be found through awareness-raising campaigns and educational activities. For many years, the WFH has supported outreach projects in different countries and conducted educational events for both lay and health care professionals in conjunction with our national member organizations (NMOs).

This landmark day helps to illustrate the importance of the WFH Humanitarian Aid Program — an important endeavour for the WFH that provides a range of integrated care development training programs to ensure the local infrastructure and medical expertise are available to optimize and appropriately use donated products.

Since 1989, patient groups worldwide have annually marked World Hemophilia Day on 17 April to raise awareness and understanding of hemophilia and other bleeding disorders. The date was chosen in honor of the World Federation of Hemophilia founder, Frank Schnabel, who was born on that day.

World Hemophilia Day aims to:

  • Be the leading platform to promote hemophilia advocacy efforts

  • Promote the importance of taking coordinated and concerted actions to increase the number of patients diagnosed around the world and to strive to reach “Treatment for all”

  • Draw attention to the key issues and put hemophilia and bleeding disorders in the spotlight

Join us as we take together the first step to care!

"Taking care of existing patients with a bleeding disorder is critically important. But we also have to look at those people who are suffering and haven't been diagnosed. We have to find these individuals, bring them into the community and provide them with the support they deserve."

—Alain Weill, President of the WFH

Source: The World Federation of Hemophilia